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Alfredo Trento, MD, FACS Director, Division of


 
A look at some of Dr. Michael DeBakey's contributions to medicine:

Dacron: In 1953 he introduced use of the new fabric, which became part of the standard treatment to repair aortic aneurysms.

Instruments: He devised more than 50, including the DeBakey clamps and the DeBakey forceps used by surgeons worldwide.

Institutions: Developed the mobile army surgical hospital, or MASH unit, which evolved into the Veterans Affairs hospital system, and the National Library of Medicine.

 

 

 

Welcome to AorticDissection.com

 
My name is Brian S. Tinsley and I am an aortic dissection survivor. The purpose of this website is to provide other aortic dissection patients with a single source of information that they can hopefully find useful. When I got out of the hospital, I could find zero positive information about living with this prognoses. Everything I read seemed to just lead to how many deaths had occurred and I was so scared to read on

However, the best defense is to have the knowledge and information to cope with this and to be able to help others as well. That's my goal! I want to help people understand more about this growing problem and what can be done to help. I will try my best to keep this site up to date and answer any questions you might have. I am merely a layman and not a doctor. I have made connections with some great folks very familiar with this issue and feel great about spreading the knowledge.

Did you know this? Type B Dissection of the Aorta accounts for 40% of all Aortic Dissection and its occurrence is more frequent in the mornings between 6 to 10 am and in the winter season.

I have teamed up with the some of the top surgeons from around the world who help me on this site with questions, CT Scan reviews and 2nd/3rd opinions. If you are in a situation that doesn't feel right... by all means, and if at all possible, get that 2nd and 3rd opinion-I will be glad to go to bat for you and help bring some expertise to assist.

I also wanted a place for people to be able to post their own stories and hear from others. I have created a message board that you can use as well as find out other stories and what they have done. I have teamed up with various surgeons across the country and globe who can offer some suggestions on where to get help. If you can't use the Top Menu that well, try clicking on the SITE MAP link.

For those of you who wish to see some various aortic surgery techniques, I have picked out a few of them on YouTube. You can see my play list by clicking here.

I have just discovered this video done on Tyler Kahle (only 19) by Methodist Hospital. It's a video done to increase the awareness of this deadly disease and how important the ER visit is in the outcome of the patient-regardless of the age of the victim. It's some thing that everyone should watch immediately. Click Here to watch.

Bottom Line: Family History of AD=genetic genes are passed on to family members. If you get the ER Room with chest pain-DO NOT LEAVE with out proof (via CT) that an AorticDissection (ascending/thoracic) is not the cause. You need to demand the proof! You MUST be persistent! Don't leave UNTIL you have the CT images reviewed! Going home=a certain and very likely early preventable death-regardless of the patients age!!!

Things YOU need to know!

 
Aortic dissection is the most common catastrophe of the aorta, 2-3 times more common than rupture of the abdominal aorta. When left untreated, about 33% of patients die within the first 24 hours, and 50% die within 48 hours. The 2-week mortality rate approaches 75% in patients with undiagnosed ascending aortic dissection.

For a great "overview" and "pictures" read this now! Click Here! and Click Here!  Here's another great article! Those three sites should set you on your way very quickly to learning about what an Aortic Dissection really is and what causes them. Here's a great site with some pretty explicit pictures of an aortic dissection. Here's some great pictures of the what the Dissections look like. More here!  Here's some of our experts.

There is also some different examples (pictures) on Google. Click here! I like this one as well! What's the future of Aortic Repairs? Here's one technique. Finally, one of my favorites for good all around information about the aorta.

Definition

Aortic dissection is a rare, but potentially fatal, condition in which blood passes through the inner lining and between the layers of the aorta. The dissecting aorta usually does not burst, but has an abnormal second channel within it.

Description

A defect in the inner lining of the aorta allows an opening or tear to develop. The aorta is the main artery of the body and is an area of high blood pressure. When a defect develops, blood pressure can force the tear to open and allow blood to pass through. Since the blood is under pressure, it eventually splits (dissecting) the middle layer of the blood vessel, creating a new channel for blood. The length of the channel grows over time and can result in the closing off of connection points to other arteries. This can lead to heart attack, strokes, abdominal pain, and nerve damage. Blood may leak from the dissection and collect in the chest an around the heart.

A second mechanism leading to aortic dissection is medial hemorrhage. A medial hemorrhage occurs in the middle layer of the blood vessel and spills through the inner lining of the aorta wall. This opening then allows blood from the aorta to enter the vessel wall and begin a dissection. Approximately 2,000 cases of aortic dissection occur yearly in the United States.

Causes and symptoms

Aortic dissection is caused by a deterioration of the inner lining of the aorta. There are a number of conditions that predispose a person to develop defects of the inner lining, including high blood pressure, Marfan's Syndrome, Ehlers-Danlos syndrome, connective tissue diseases, and defects of heart development which begin during fetal development. A dissection can also occur accidentally following insertion of a catheter, trauma, or surgery. The main symptom is sudden, intense pain. The pain can be so intense as to immobilize the patient and cause him to fall to the ground. The pain is frequently felt in both the chest and in the back, between the shoulder blades. The extent of the pain is proportional to the length of the dissection.

Diagnosis

The pain experienced by the patient is the first symptom of aortic dissection and is unique. The pain is usually described by the patient as "tearing, ripping, or stabbing." This is in contrast to the pain associated with heart attacks. The patient frequently has a reduced or absent pulse in the extremities. A murmur may be heard if the dissection is close to the heart. An enlarged aorta will usually appear in the chest x rays and ultrasound exams of most patients. The use of a blood dye in angiograms and/or CT scans (computed tomography scans) will aid in diagnosing and visualizing the dissection.

Treatment

Because of the potentially fatal nature of aortic dissection, patients are treated immediately. Drugs are administered to reduce the blood pressure and heart rate. If the dissection is small, drug therapy alone may be used. In other cases, surgery is performed. In surgery, damaged sections of the aorta are removed and a synthetic graft is often used to reconstruct the damaged vessel.

Prognosis

Depending on the nature and extent of the dissection, death can occur within a few hours of the start of a dissection. Approximately 75% of untreated people die within two weeks of the start of a dissection. Of those who are treated, 40% survive more than 10 years. Patients are usually given long term treatment with drugs to reduce their blood pressure, even if they have had surgery.

Types of Aortic Dissections

The DeBakey system, named after surgeon and aortic dissection sufferer Michael E. DeBakey, is an anatomical description of the aortic dissection. It categorizes the dissection based on where the original intimal tear is located and the extent of the dissection (localized to either the ascending aorta or descending aorta, or involves both the ascending and descending aorta.

  • Type I - Originates in ascending aorta, propagates at least to the aortic arch and often beyond it distally.
  • Type II – Originates in and is confined to the ascending aorta.
  • Type III – Originates in descending aorta, rarely extends proximally.

Stanford classification system

Divided into 2 groups; A and B depending on whether the ascending aorta is involved.

  • A = Type I and II DeBakey
  • B = Type III DeBakey

Summary

I hope that this website will help educate you about what an aortic dissection really is and how to get help and when you are in the ER room, to know what tests to demand if you feel that you are not getting adequate care. It's up to you to know the signs and be the best prepared you can. It's my goal to do what ever I can to help you succeed!

I would also like to dedicate this site to the loving family of Tyler Kahle and for all the wonderful things that their family is doing to help save other lives. They are truly an amazing family with a drive and determination to make an impact! Hats off to them!

If you have any recommendations for improvements or links to add, just email me them and I will add them. Finally, if you need to speak with someone or have medical questions, just let me know, we can get you the help you need. I will try my best!

Kindest Regards,

Brian S. Tinsley

(206)-550-7957

*I am in the Pacific Standard Time Zone



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Here's a slide show of many of the best pictures/diagrams of what an aortic dissection/aneurysm looks like. 

 

 

 

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This site is dedicated to the loving memories of Tyler Kahle.

 

Stanford University

Center for Marfan Syndrome

and Related Aortic Disorders 

Aneurysm Center

 

Johns Hopkins

Duke E. Cameron, M.D.
Professor of Surgery
The James T. Dresher Sr. Professor
Director of Pediatric Cardiac Surgery
Co-Director of The Dana and Albert "Cubby" Broccoli Center for Aortic Diseases

Harry (Hal) Dietz, MD

Institute of Genetic Medicine

 

Visit the Cleveland Clinic here

Svensson, Lars, M.D., Ph.D.
Director, Center for Aortic Surgery and Director, Marfan Syndrome and Connective Tissue Disorder Clinic

 

Columbia University

Dept of Surgery

Director, Aortic Surgery Program
Division of Cardiothoracic Surgery
Columbia University Medical Center
177 Fort Washinton Ave.
MHB 7GN-435
New York, NY 10032

Phone: 212-305-4980
Fax: 212-305-2439

as2276@columbia.edu

 

Texas Heart Institute

Cardiovascular Surgery

Texas Heart® Institute at St. Luke's Episcopal Hospital
Ranked Among Nation’s Top Heart Centers for
17th Consecutive Year

 

 

Mount Sinai Heart

Mount Sinai Aortic Program-Gabriele Di Luozzo, M.D and Randall B. Griepp, M.D.

We are studying how the mutation changes the cell biology of the cells in the aorta
 

Lead author Dr Dianna Milewicz. See Publications here! Gene found ACTA2

Genetic Testing Here!

 

Concerns over heart condition

The husband of a Hampshire woman who died of a rare heart condition, is calling for greater awareness of the illness by hospital staff. Ann Skelton Story.

 
Yale School of Medicine

Yale Center for Thoracic Aortic Disease

John A. Elefteriades, MD

 

 

 

Joseph S. Coselli, MD

Dr. Joseph S. Coselli is Chief of the Division of Cardiothoracic Surgery and a Professor of Surgery in the Michael E. DeBakey Department of Surgery at Baylor College of Medicine. He is also the Chielf of Adult Cardiac Surgery at the Texas Heart Institute and Chief of the Adult Cardiac Surgery Section, as well as Associate Chief of the Cardiovascular Service at St. Luke’s Episcopal Hospital.

 

Massachusetts General Hospital

Thoracic Aorta Center

Richard P. Cambria, MD,

Alan D. Hilgenberg, MD,

Eric M. Isselbacher, MD,

 

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