A frantic call to my family led to an ambulance at my door within 5 minutes ( luckily I live next door to a hospital); soon after a very knowledgeable Doctor ( who saved my life) diagnosed my condition. 5 hour's later (another hospital, another story) I had my operation, as I went under I remember the surgeon saying "you have a 25% chance of surviving".

They keep you sedated for a couple of days, I think, & the only thing I remember is seeing a light that I began to walk towards. I awoke with a sudden jolt... Nothing can experience you to the emotions of that moment, is it reality, am I alive? I was in tears for several minutes after reality set in.

Its been a tough long hard year & so much has happened I could write a book. But best to say I too am a survivor & working hard to answer many questions. I have seen several cardiac specialists ( there appear to be none that only specialize in aortic dissection so far) & we continue to discuss short & long term management.

I don't have any answers & there is NO miracle cure. I have been seeing a counselor who has made me face up to living with this condition ( I/we have NO choice). I still have questions, below, that come to mind every day, as like everyone else I want to live as long as possible. This year I am getting married so every precious second counts.

Medication

Support – web sites, societies, clinics, people, communities etc., anything useful

Work - will they keep me employed

What about the future...

Latest research

You continue the list, I am sure there are plenty more

The funny thing is this year the UK government set aside money for screening for this condition, however it wouldn't have mattered as it's for over 60's only... when will they learn it can effect anyone.

Regards,